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The Lonely Journey - Find Your Fibromyalgia Support
Inspiration, The Blog

The Lonely Journey – Finding Your Fibromyalgia Support

Our journeys with Fibromyalgia are often long and very lonely.

It is difficult it seems for our loved ones, friends and colleagues to contemplate ever feeling so awful and wracked with pain when, in most cases you look surprisingly well. Doctors, if you get a sympathetic one, are busy and how do you pour your heart out in just the few minutes assigned to each patient? Finding your Fibromyalgia support network isn’t always easy.

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Fibromyalgia Facts, The Blog

….But You Look So Well

Over the years it is true to say that on the days I have felt my worst I am invariably greeted with the words by somebody or another “you look really well”.

I have always kind of smiled at this, even joked about how crap I feel yet people think I look amazing. However, this week it really got to me and set me thinking about the realities of living with what is effectively an invisible illness. I remember once a doctor saying to me that I would probably be better off having a leg missing at least then people would know I was suffering – I am of course not suggesting that we all go out to have legs amputated but I kind of see his point.

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